This note is from Judy Good Hensley who will be handing me off Da' Coat when I go to visit here this month as I represent The Regulars in Tennessee. You can read more about Judy and her friend Sherri Woodbridge on www.parkinsonsjourney.com
Truly amazing!!!
Eileen
The Coat to Go International and Up A Mountain
Recently, I was reading about an incredible group of people called the Regulars http://theregulars.org/ who are climbing a mountain a year for 10 year to help raise awareness and funds for cures for Alzheimer’s and Parkinson’s disease. I contacted one of the people on facebook who will be participating this year as the group climbs Mt. Kilimangaro in Africa in early July. And it didn’t take me long to ask my new mountain climbing facebook friend, Strong Feather (Eileen Colon) if she would do me the favor of carrying a piece of the coat along with an orange string and a Parkinson’s symbol pin with her up the mountain and take a picture with these items on the mountain with her. Upon hearing about ‘da coat, she asked how much it weighed and then told me to my great surprise that she wanted to take the coat with her if possible!!! So ‘da coat is going international. I mean, since I’ve been diagnosed with PD, I’ve been to several new places but none international (not yet, anyway) and ‘da coat is getting some travel time. It is my hope that ‘da coat is a symbol of how life with a chronic illness can still be a life that provides nuggets of happiness, in many different times, places, things, and people!
Judy Good Hensley
Wednesday, May 6, 2009
Friday, May 1, 2009
Ain't No Mountain High Enough - Ticket Sale Information
Tickets are now available to purchase for "Ain't No Mountain High Enough" Event that I will be hosting June 18th at the new Hamilton Manor in Hamilton, NJ. Click on the button to direct you to the desired charity to purchase a ticket. 100% of ticket proceeds will go to said charity. Thank you for your support of "The Regulars".
World Up,
Strong Feather aka Eileen
The Alzheimer's Association
Michael J. Fox Foundation for Parkinson's
World Up,
Strong Feather aka Eileen
The Alzheimer's Association
Michael J. Fox Foundation for Parkinson's
Wednesday, April 8, 2009
Ain't No Mountain High Enough - Fundraising Event for The Regulars
Ain't No Mountain High Enough - Fundraising Event for The Regulars
Hosted by:
Strong Feather - A Trail Called Hope IV
When:
Thursday, Jun 18, 2009 6:00 PM - 9:00 PM EDT
Description
Come out and meet "The Regulars" and help us raise awareness and funds for the Alzheimer's Association and the Michael J. Fox Foundation for Parkinson's while enjoying live entertainment and a D.J. Take a chance on our Chinese Auction items along with our Silent Auction. Raffle tickets will also be sold and pulled every hour. There will be appetizers and one glass of wine with your admission price.
For ticket information and price please contact Kathryn Hartz at 609-570-0342.
We promise you an enjoyable evening as we all ban together to make a difference in the hundreds of lives affected by these two diseases. "Together is One" is our motto.
Visit us on the web at:
www.theRegulars.org
Also visit the Manor at
www.thehamiltonmanor.com
RSVP Guests:
How many?
The Hamilton Manor
30 Route 156
Trenton, NJ 08691
Hosted by:
Strong Feather - A Trail Called Hope IV
When:
Thursday, Jun 18, 2009 6:00 PM - 9:00 PM EDT
Description
Come out and meet "The Regulars" and help us raise awareness and funds for the Alzheimer's Association and the Michael J. Fox Foundation for Parkinson's while enjoying live entertainment and a D.J. Take a chance on our Chinese Auction items along with our Silent Auction. Raffle tickets will also be sold and pulled every hour. There will be appetizers and one glass of wine with your admission price.
For ticket information and price please contact Kathryn Hartz at 609-570-0342.
We promise you an enjoyable evening as we all ban together to make a difference in the hundreds of lives affected by these two diseases. "Together is One" is our motto.
Visit us on the web at:
www.theRegulars.org
Also visit the Manor at
www.thehamiltonmanor.com
RSVP Guests:
How many?
The Hamilton Manor
30 Route 156
Trenton, NJ 08691
Thursday, March 26, 2009
Loretta Hagen
http://www.strausnews.com/west_milford_messenger/
Above is a link to the West Milford Messenger, hometown of Loretta Hagen. Her song "Sundown till Dawn" will be featured in our documentary "10 mountains 10 years". Check it out. She has a beautiful, powerful voice.
Eileen
Above is a link to the West Milford Messenger, hometown of Loretta Hagen. Her song "Sundown till Dawn" will be featured in our documentary "10 mountains 10 years". Check it out. She has a beautiful, powerful voice.
Eileen
Tuesday, March 24, 2009
Summing it Up
What is it to advocate? It is a lot of dedication, time, belief in yourself, and an effort on your part to get the word out. Is it like a job? In some respect it is but without pay. However, we do reap benefits. The lives we touch, the respect we earn, the feeling we have inside when we know we are making a difference. It humbles you when you are in this position. You begin to look at a lot of things differently. For one, the future of my children, my grandsons, my nephews and nieces, weigh the heaviest as my reasons to be a part of what I am doing. But I advocate for everyone that I have had the pleasure of being in contact with because they are the ones that need the answers now, the cures now. Sometimes when we are asked to step out of our comfort zone we either become frightened or we make excuses. Our excuses may be valid and then again they may not be. But if there is just one thing I find to be important amongst the over all scheme of things is to help others and to get others to help.
I have come across skepticism, ridicule, harshness, cruelty, non-acceptance of what I am doing. I have cried over this, become stagnant over this, stopped my training over this, all because I have doubted myself. I have never doubted why. I have had to bite my tongue to allow for an outer shell to grow so I can block it all out and remain on task. Why am I telling you this? Because support from others is second to what I do. A kind word, a recognition of what I am doing, and even a hand in helping me. But I know not everyone wants to become involved. But I believe the important thing is to accept the person trying. To support there efforts to make a difference in the lives of others. The old saying goes “If you have nothing nice to say then don’t say anything at all”. Do I want others to turn a blind eye? No. I want others to educate themselves, to look inside of themselves and see that if more of us would step up to the plate then more money would be raised, more awareness would be drawn to these diseases. Our motto: “Together is One” holds truth with everyone’s project, everyone’s foundation, everyone’s advocacy work.
Altruism: a concern or regard for the needs of others, entirely without ulterior motive.
We are a group of altruistic individuals committed to a plan to help rid Alzheimer’s and Parkinson’s Disease from existence. We train, we fundraise, we climb. But mostly, we believe in the power of people and that with combined efforts from everyone we can make this a reality. If you haven’t already stopped by our website please do so at this time. Get to know what our captain, Enzo Simone, has dedicated his life to. What he believes when he says “Regular” people can make the difference. Click on the links. Get to know the team, read there stories, become part of our fundraising efforts, or just donate. We do this for all of you.
http://www.theRegulars.org
Also on Facebook:
http://www.facebook.com/group.php?gid=71441937789&ref=mf
World Up!
Strong Feather Eileen
I have come across skepticism, ridicule, harshness, cruelty, non-acceptance of what I am doing. I have cried over this, become stagnant over this, stopped my training over this, all because I have doubted myself. I have never doubted why. I have had to bite my tongue to allow for an outer shell to grow so I can block it all out and remain on task. Why am I telling you this? Because support from others is second to what I do. A kind word, a recognition of what I am doing, and even a hand in helping me. But I know not everyone wants to become involved. But I believe the important thing is to accept the person trying. To support there efforts to make a difference in the lives of others. The old saying goes “If you have nothing nice to say then don’t say anything at all”. Do I want others to turn a blind eye? No. I want others to educate themselves, to look inside of themselves and see that if more of us would step up to the plate then more money would be raised, more awareness would be drawn to these diseases. Our motto: “Together is One” holds truth with everyone’s project, everyone’s foundation, everyone’s advocacy work.
Altruism: a concern or regard for the needs of others, entirely without ulterior motive.
We are a group of altruistic individuals committed to a plan to help rid Alzheimer’s and Parkinson’s Disease from existence. We train, we fundraise, we climb. But mostly, we believe in the power of people and that with combined efforts from everyone we can make this a reality. If you haven’t already stopped by our website please do so at this time. Get to know what our captain, Enzo Simone, has dedicated his life to. What he believes when he says “Regular” people can make the difference. Click on the links. Get to know the team, read there stories, become part of our fundraising efforts, or just donate. We do this for all of you.
http://www.theRegulars.org
Also on Facebook:
http://www.facebook.com/group.php?gid=71441937789&ref=mf
World Up!
Strong Feather Eileen
Wednesday, February 25, 2009
Shimmer
Ciao guys,
Music is strange. For me it’s a lot like blood. It fuels me, then runs out, then fuels me again. I love it and I probably always will.
A lot like music another strange thing is life. Sometimes there are a thousand words to describe it, and sometimes it feels as though I had never learned to speak and I’m struck dumb. Today I can find only two words that have any real meaning to me.
Bitter Sweet.
There is a song you might know called “Shimmer” and ironically it’s from a band called “Fuel”. I've always loved the lyrics in this song even though a lot of it probably doesn’t mean much at all. It reminds me of a lot of things, my grand mothers house in England, my mother, me, and a thousand insignificant moments which one day came back to hit me like a ton of lead making making me fall in love with them like no other moment has ever compared.
The music in "Shimmer" rides with the lyrics along the same roller coaster we all do sometimes. Lite hearted and strolling, reflective, powerful, moody, a little up, a little down, a little sad, and yet somehow a little content in at least knowing something beautiful and light existed once but may not be so for long.
Anyway, for one reason or another I’m more sentimental and a little more emotional than usual today for reason’s it’s not time to explain to people. Today some of the lyrics and music in "Shimmer" connected with me and clipped my wings a bit in a strangely complicated way. It feels a lot like falling, but I'm still flying.
While I believe we each make much of our own destiny...
Destiny is - well - still destiny.
World
Here is a link to the video if you'd like to listen to it.
http://www.youtube.com/watch?v=p0QMfK9hzgA
Music is strange. For me it’s a lot like blood. It fuels me, then runs out, then fuels me again. I love it and I probably always will.
A lot like music another strange thing is life. Sometimes there are a thousand words to describe it, and sometimes it feels as though I had never learned to speak and I’m struck dumb. Today I can find only two words that have any real meaning to me.
Bitter Sweet.
There is a song you might know called “Shimmer” and ironically it’s from a band called “Fuel”. I've always loved the lyrics in this song even though a lot of it probably doesn’t mean much at all. It reminds me of a lot of things, my grand mothers house in England, my mother, me, and a thousand insignificant moments which one day came back to hit me like a ton of lead making making me fall in love with them like no other moment has ever compared.
The music in "Shimmer" rides with the lyrics along the same roller coaster we all do sometimes. Lite hearted and strolling, reflective, powerful, moody, a little up, a little down, a little sad, and yet somehow a little content in at least knowing something beautiful and light existed once but may not be so for long.
Anyway, for one reason or another I’m more sentimental and a little more emotional than usual today for reason’s it’s not time to explain to people. Today some of the lyrics and music in "Shimmer" connected with me and clipped my wings a bit in a strangely complicated way. It feels a lot like falling, but I'm still flying.
While I believe we each make much of our own destiny...
Destiny is - well - still destiny.
World
Here is a link to the video if you'd like to listen to it.
http://www.youtube.com/watch?v=p0QMfK9hzgA
Monday, February 9, 2009
The Unexpected
I am continually learning as I go along that so many unexpected things continue to happen. So many good things and so many inspiring things. I have faith in everyone because I have come so far in the last three years and it is in thanks to the strong group of family and friends that I have. Enzo has penned "Together Is One" and it has become one of the strongest statements made. The more people I meet along the way, the more people that are inspired by the group, allows for "Together Is One" to resonate.
We have been linked to many groups. We all share one common bond and that is to find cures.
http://parkinsonsjourney.com/we-need-to-get-behind-this-effortthe-regulars
I add this link to direct you over to a website that has placed us there to draw awareness to what we are doing. I have also had the pleasure of becoming friends with Judy Hensley who has asked me to do something for her while I climb up Kilimanjaro. Her words to me were so kind and so humbling. I never view myself as the one making anything happening here. I view myself as being handed a huge opportunity to help make a difference. And collectively with the group "The Regulars" I am able to do that.
Judy has a multicolored coat she purchased that she references to being like the ever changing progression of her Parkinson's Disease. It is viewed as different as she feels Parkinson's patients are when in the public eye. The coat has traveled to many events and has been worn by many an individual to display its uniqueness. Now she wants me to wear it at the top of Kili. With honor I will do this and with pride for the community of individuals I fight for. We will autograph the coat for her too and when I return home I will send it back to her. She is giving me a piece of the coat also that I will pin either on my hat or my pack so I have a remembrance of her coat.
I am forever blinking my eyes, shaking my head, and thanking God for it all. I could never have come this far without all of you. And you all know who you are. I never underestimate anyone or anything. Instead I look ahead and not back because I know good things are on the horizon for every one of us.
World Up!
Strong Feather aka Eileen
www.theRegulars.org
Currently reading:
Making the Climb: What a Novice Climber Learned About Life on Mount Kilimanjaro
By John C. Bowling
We have been linked to many groups. We all share one common bond and that is to find cures.
http://parkinsonsjourney.com/we-need-to-get-behind-this-effortthe-regulars
I add this link to direct you over to a website that has placed us there to draw awareness to what we are doing. I have also had the pleasure of becoming friends with Judy Hensley who has asked me to do something for her while I climb up Kilimanjaro. Her words to me were so kind and so humbling. I never view myself as the one making anything happening here. I view myself as being handed a huge opportunity to help make a difference. And collectively with the group "The Regulars" I am able to do that.
Judy has a multicolored coat she purchased that she references to being like the ever changing progression of her Parkinson's Disease. It is viewed as different as she feels Parkinson's patients are when in the public eye. The coat has traveled to many events and has been worn by many an individual to display its uniqueness. Now she wants me to wear it at the top of Kili. With honor I will do this and with pride for the community of individuals I fight for. We will autograph the coat for her too and when I return home I will send it back to her. She is giving me a piece of the coat also that I will pin either on my hat or my pack so I have a remembrance of her coat.
I am forever blinking my eyes, shaking my head, and thanking God for it all. I could never have come this far without all of you. And you all know who you are. I never underestimate anyone or anything. Instead I look ahead and not back because I know good things are on the horizon for every one of us.
World Up!
Strong Feather aka Eileen
www.theRegulars.org
Currently reading:
Making the Climb: What a Novice Climber Learned About Life on Mount Kilimanjaro
By John C. Bowling
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